them, every decision was a joint decision, every endeavor a joint endeavor. In thirty years, they’d hardly spent a night apart.
What did Barack and I want? We wanted a modern partnership that suited us both. He saw marriage as the loving alignment of two people who could lead parallel lives but without forgoing any independent dreams or ambitions. For me, marriage was more like a full-on merger, a reconfiguring of two lives into one, with the well-being of a family taking precedence over any one agenda or goal. I didn’t exactly want a life like my parents had. I didn’t want to live in the same house forever, work the same job, and never claim any space for myself, but I did want the year-to-year, decade-to-decade steadiness they had. “I do recognize the value of individuals having their own interests, ambitions, and dreams,” I wrote in my journal. “But I don’t believe that the pursuit of one person’s dreams should come at the expense of the couple.”
We’d work out our feelings, I figured, when Barack came back to Chicago, when the weather warmed up, when we had the luxury of spending weekends together again. I just had to wait, though waiting was hard. I craved permanence. From the living room of my apartment, I could sometimes hear the murmur of my parents talking on the floor below. I heard my mother laughing as my father told some sort of story. I heard them shutting off the TV to get ready for bed. I was twenty-seven years old now, and there were days when all I wanted was to feel complete. I wanted to grab every last thing I loved and stake it ruthlessly to the ground. I’d known just enough loss by then to know that there was more coming.
* * *
It was I who made the appointment for my father to see a doctor, but it was my mother who ultimately got him there—by ambulance, as it turned out. His feet had ballooned and grown tender to the point that he finally admitted that walking on them felt like walking on needles. When it was time to go, he couldn’t stand on them at all. I was at work that day, but my mother described it to me later—Dad being carried out of the house by burly paramedics, trying to joke with them as they went.
He was taken directly to the hospital at the University of Chicago. What followed was a string of lost days spent in the purgatory of blood draws, pulse checks, untouched meal trays, and squads of doctors making rounds. All the while, my father continued to swell. His face puffed up, his neck got thicker, his voice grew weak. Cushing’s syndrome was the official diagnosis, possibly related to his MS and possibly not. Either way, we were well past the point of any sort of stopgap treatment. His endocrine system was now going fully haywire. A scan showed that he had a growth in his throat that had become so enlarged he was practically choking on it.
“I don’t know how I missed that,” my father said to the doctor, sounding genuinely perplexed, as if he hadn’t felt a single symptom leading up to this point, as if he hadn’t spent weeks and months, if not years, ignoring his pain.
We cycled through hospital visits to be with him—my mom, Craig, Janis, and me. We came and went over days as the doctors blasted him with medicine, as tubes were added and machines were hooked up. We tried to grasp what the specialists were telling us but could make little sense of it. We rearranged my dad’s pillows and talked uselessly about college basketball and the weather outside, knowing that he was listening, though it exhausted him now to speak. We were a family of planners, but now everything seemed unplanned. Slowly, my father was sinking away from us, enveloped by some invisible sea. We called him back with old memories, seeing how they put a little brightness in his eyes. Remember the Deuce and a Quarter and how we used to roll around in that giant backseat on our summer outings to the drive-in? Remember the boxing gloves you gave us, and the swimming pool at Dukes Happy Holiday Resort? What about how you used to build the props for Robbie’s Operetta Workshop? What about dinners at Dandy’s house? Remember when Mom made us fried shrimp on New Year’s