A Secret Birthright - By Olivia Gates Page 0,16
desk for a computer tablet. At the sitting area, he set Ryan on the ground, gave him every safe article around to play with. Ryan instead made it clear he wanted to nap. She produced a blanket from the bag Rose had left behind and Fareed spread it in front of the couch, where Ryan crawled and promptly feel asleep facedown.
Once they sat down, Fareed said, “Tell me about Ryan, Gwen.”
Don’t call me that, she wanted to cry out. She needed to regain her balance and there was no hope she would when he kept calling her Gwaihn in that lion’s purr of his.
Instead she nodded her shaky assent. Over the next minutes, he obtained an exhaustive history of Ryan’s pre- and postnatal periods and developmental milestones, his fingers flying over the glossy tablet’s surface documenting it all.
Finally, he put the tablet down, turned to face her. “You do know he has spina bifida occulta?”
His question/declaration felt like a direct blow to her heart. She’d known, but had still been hoping against hope.…
Tears surged again as she nodded. “As a researcher of drugs targeting the nervous system, I knew the basics of the condition.” Incomplete closure of vertebrae around the spinal cord, which instead of hanging loose in the spinal canal was tethered to the bone, potentially causing varying degrees of nerve damage and disability. “I studied it extensively because I suspected Ryan of having it. But every pediatrician and neurologist told me not to worry, that ten percent of people have it and are asymptomatic, something they discover as adults during X-rays for unrelated complaints. I persisted, and a couple conceded that he has minor neurological deficits, which might or might not mean future disability but that there was no treatment anyway. But I couldn’t just wait until Ryan grew up and couldn’t walk or never developed bowel or urinary continence. I had to know for sure that there was nothing to be done, and only you…only your opinion will do…”
The sobs that had been banked broke loose.
He was down on his haunches in front of her in a blink, his hands squeezing her shoulders. “It was amazing that you noticed the mild weakness in his legs and clawing in his toes. He’s sitting and crawling, and with him far away from being toilet-trained and without previous experience with children, I’m beyond impressed that you discerned his condition even after the repeated dismissal of your worries. But I can excuse the doctors who examined him. It would take someone as extensively versed in the rare as I am to form an opinion on so irregular a condition.”
Her sobs had been subsiding gradually, at his soothing and under the urge to swamp him with questions.
The paramount one burst from her. “And you’ve formed one?”
He nodded. “You were absolutely right. Without surgery, he may develop increasing disability in lower limb motor function and bowel and urinary control.”
She sank her fingers into his sinew and muscle. “So there is a surgery? To prevent further damage? What about any that already exists? Is there damage? What about bowel and urinary problems? My sources say even when surgery successfully closes the defect and releases the cord, those usually never go away.…” She faltered on the last question, what she of all people knew was a long shot. “And if there’s a residual handicap, would my drug help?”
He rose, came down beside her. This time, she sank into his solicitude gratefully, only the last vestiges of her willpower stopping her from physically seeking it.
“Most, if not all, surgeons wouldn’t touch a case like Ryan’s. They’d say their findings are too ephemeral to warrant a surgery that wouldn’t offer much, if any, improvement. But I say different.”
Hope surged so hard inside her that she choked with its agonizing expansion. “You—you mean you’re not telling me to give up?”
He shook his head. “Of course, any surgery comes with risks.” The world darkened again. He caught her hand, squeezed it. “I have to mention risks because it’s unethical to promise you a risk-free procedure, not because I expect problems. But I can and do promise you and Ryan the best result possible.”
Her tears faltered. “Y-you mean you want to operate on him?”
He nodded. “He’ll be safe with me, Gwen.”
She stifled another heart-wrenching sob. Fareed’s arm slid around her. “And yes, your drug will regenerate the nerve damage. I know it’s not approved for use on children, but because I believed the delay in approval was built on bureaucracy